IntroductionAlzheimer's disease (AD) is the most common neurodegenerative cause of dementia. Social media has become a major source of information for patients and families. This study is the first to explore the quality, source, and content of AD videos on TikTok with emphasis on the role of healthcare professionals (HCPs).
MethodsA cross-sectional analysis was conducted on April 30, 2025, on AD videos on TikTok, including the data of usernames, video title, date of posting, and days since uploaded, video duration, video sources or uploader, content type, and engagement metrics. The DISCERN tool, a 15-item questionnaire for judging the quality of written consumer health information on treatment choices, was used to evaluate the quality of health information. Statistical analysis was conducted using R Statistical software.
ResultsIn total, 100 videos of the hashtag Alzheimer's were deemed eligible with median (interquartile range) engagement metrics: 4201.00 (300.25 to 66775.00) likes, 131.50 (13.00 to 1071.00) comments, and 438.00 (43.00 to 3414.00) shares. HCPs streamed only 33% of videos. There were videos about therapy suggestions (10%), disease descriptions (30%), and lifestyle (16%). The majority had poor (42%) and very poor (39%) quality. Videos by HCPs had more medical content with higher quality despite insignificant differences in engagement compared to non-HCP videos.
ConclusionThis study revealed an overall poor quality of public information on AD on TikTok, with a paucity of essential information, with minor contributions from HCPs. HCPs and organizations should provide creative, systematic plans to enhance public awareness on social media.
Keywords Alzheimer
· Public health
· TikTok
· Social Media
· Dementia
· Awareness
All subjects
